A year in review 2016: Janine Fuller’s toughest fight

The legendary activist has inspired generations of queer Vancouverites

The phone hasn’t been ringing at Janine Fuller’s house. The legendary anti-censorship activist, bookstore manager, playwright and community pillar has been battling the late stages of Huntington’s disease.

Fuller has survived fire bombings at two of the bookstores that she’s worked for, but she won’t survive this. Huntington’s is a debilitating, terminal illness.

Fuller, who has known her status for 20 years, left her position at Little Sister’s in 2015 to take care of her health.

Earlier this year, Xtra writer Layla Cameron spent time with Fuller, who opened up about how friends have distanced themselves, not knowing how to treat someone who was dying.

Fuller saw the same phenomenon happen to her mother, and now it’s been happening to her.

And despite the assisted suicide legislation introduced by the government, people with Huntington’s aren’t covered, and Fuller had to endure her twin brother’s suicide last year.

The honest way in which Fuller and her partner Julie Stines opened up about their struggles, resonated with Vancouverites, leading it be one of the most read pieces from Xtra this year.

Fuller’s story inspired compassion and will hopefully lead to people reaching out to the ones they love before they’re gone.

This story is part of Xtra’s A Year in Review news picks for 2016.

Read More About:
Power, Opinion, Vancouver, Year in Review

Keep Reading

Trans issues didn’t doom the Democrats

OPINION: The Republicans won ending on a giant anti-trans note, but Democrats ultimately failed to communicate on class

Xtra Explains: Trans girls and sports

Debunking some of the biggest myths around trans girls and fairness in sports

How ‘mature minor’ laws let trans kids make their own decisions

Canadian law lets some youth make medical or legal decisions for themselves, but how does it work?

To combat transphobia, we need to engage with the people who spread it

OPINION: opening up a dialogue with those we disagree with is key if we want to achieve widespread social change